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I was diagnosed with Cystic Fibrosis when I was 5 1/2 months old. Growing up, my life was pretty much like any other child's. It was filled with sports, ballet, school functions and everything else a child likes to do. The only thing different was that I had to take enzymes to digest my food. My first hospitalization was when I was 20 years old. After that from 20 to almost 23 I was in three times...I also had a feeding tube put in my stomach because I only weighed 85 pounds. The Christmas before I turned 23 I got the flu really bad and got down to 79 pounds. From then on I've been hospitalized a whole lot. When I was 25 I was evaluated for a double lung transplant and even though I was on oxygen 24 hours a day and had no quality of life.....they told me I was too healthy. About two to three months after that, they changed their minds. Well, at that point in time, I changed my mind also and decided that I didn't want to go that route. It has been two and a half years since then and I am feeling better than ever. Well, figuratively speaking that is. I am hospitalized about every month to every two months. I still have my feeding tube for when I need it and I am on my second infusaport. Yes, I have Cystic Fibrosis but no, it doesn't have me. :) Information resources for Cystic Fibrosis
Support Group Personal pages by or about people with CF
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Well, here is my story dealing with Cystic Fibrosis. Like everyone else my story is just as different as our personalities...........